National Support Groups
There are a wide number of groups available to support families with children with specific conditions and rare syndromes and their websites are listed below although we cannot vouch for the quality of the support they can provide.
Angelman syndrome :- www.angelmanuk.org
Attention deficit hyperactivity disorder :- www.adhdandyou.co.uk
Autistic spectrum disorder :- www.autism.org.uk
Cornelia de Lange syndrome :- www.criduchat.co.uk
Down's syndrome :- www.downs-syndrome.org.uk
Foetal alcohol syndrome :- www.nofas-uk.org
Fragile X syndrome :- www.fragilex.org.uk
Hemiplegia :- www.hemihelp.org.uk
Joubert syndrome :- www.jsrdf.org
Lowe syndrome :- www.lowetrust.com
Prader-Willi syndrome :- www.pwsa.co.uk
Rett syndrome :- www.rettuk.org
Rubinstein Taybi syndrome :- www.rtsuk.org
Smith-Lemli-Opitz syndrome :- www.smithlemliopitz.org
Smith-Magenis syndrome :- www.smith-magenis.co.uk
Sotos syndrome :- www.sotossyndrome.org
Spina Bifida and Hydrocephalus :- www.shinecharity.org.uk
Tourette syndrome :- www.tourettes-action.org.uk
West syndrome :- www.wssg.org.uk
Williams syndrome :- www.williams-syndrome.org.uk
Wolf-Hirschhorn syndrome :- www.whs4pminus.co.uk
Worster-Drought syndrome :- www.wdssg.org.uk
Other useful sites
National health :- www.nhs.uk
National institute of neurological disroders and stroke (NINDS) :- www.ninds.nih.gov
Speech and language impairment :- www.ican.org.uk
Scope - www.scope.org.uk
Contact a family - for families with disabled children:- www.cafamily.org.uk
Mencap - www.mencap.org.uk
Support for Siblings
There are many sources of support for siblings of children with learning disabilities which can be access through the following websites: